Status epilepticus can occur when a seizure lasts more than 5 minutes or seizures happen in clusters. When there is no rest between seizures the brain can get stuck and there is no recovery. The longer a seizure lasts, the less likely it will respond to medication, the more increased risk of death. One of Damonito's doctors said that every time he has a seizure that doesn't stop on its own, he has a 20% chance of dying. It's scary.
This year has been particularly hard. His seizure activity has been increasing, there have been a number of hospital stays and then in May, he had a seizure that wouldn't stop. High power drugs were administered and eventually they got the seizure under control but it took days in ICU to recover.
After 4 trips to ICU in about a month, his doctors recommended a corpus collosotomy. Brain surgery. It really wasn't a tough decision because he was out of options. His rescue drugs were being used daily to control seizure activity. He already has a VNS and tried the keto-genic diet. He needed this.
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