Friday, November 28, 2008

things i'm thankful for:

Clozabam:
When I think about the fact that before moving to Phoenix, before the VNS chip, before the brain surgery, before Clozabam, Damonito was having hundreds of seizures each day.

Happy Thanksgiving to everyone. Damonito was having a bad day yesterday but that means he was having a few drop seizures every hour which doesn't seem so bad. There is a lot of excitement that surrounds the holiday so it's not surprising that he'd have more seizures. Despite the seizures he had a great day. He enjoyed some of the traditional thanksgiving feast... turkey... and of course, the traditional thanksgiving banana.
Damonito and I were playing in the living room. We were playing, "I'm gonna GET YOU!" Like any toddler, he loves it and laughs so hard that he can barely make it to the safety of the sofa before I "get him." Last year a bad seizure day would have meant that he was down for the count, in bed, not even able to come out of his room. So it was great to have a bad seizure day that would have been a good seizure day a year ago. Thanks, Ovation Pharmaceuticals for making Clozabam available in North America... Canada... you've made the life of one little boy better.

Sunday, November 2, 2008

superman!

Halloween is my favorite holiday. Dressing up and going trick or treating is such a blast. I have a long standing tradition of going trick or treating first with my kids, then with my friend, Deb, and her girls, when Joe was born he joined us and then Damonito (I suppose when Harmonie has her baby we'll have to figure something out for trick or treat!).

Sometimes the excitement and the lights are just too much for Damonito but not this year. He was dressed as superman and we wheeled him around the neighborhood. He seemed to be having a few drop seizures but he was in good spirits (he! he!) all night. I dressed as a witch and I guess my hat was pretty intriguing.




Damonito is my little superman. My superhero. He makes me humble everyday.