Monday, April 21, 2008

six of one, half dozen of the other



The trouble with epilepsy medication is often it solves one problem but makes something else worse. With the new medication, Damonito's drop seizures are nearly under control but at the cost of more grand mal seizures. In reality, even though recovery from a grand mal takes time, they do less damage than the drop seizures. However, the grand mals are scary because he stops breathing. Damonito is one of those rare cases so things like light and colors can cause drop seizures. Certain color are worse than others... bright blues and reds together are a guaranteed seizure. Sometimes things that didn't cause a seizure one day will cause a seizure the next.

Thursday, April 17, 2008

prognosis


According to emedtv.com: the prognosis for individuals with Lennox-Gastaut syndrome varies. There is no cure for the disorder. Complete recovery, including freedom from seizures and normal development, is very unusual for people with Lennox-Gastaut syndrome.

Sunday, April 13, 2008

remember to breathe...


SUDEP is sudden unexplained or unexpected death in an epilepsy patient. It's when a person with epilepsy dies unexpectedly, without apparent cause. I know this now because Damonito was found blue in his bed one Sunday morning. Luckily, while the ambulance was on its way his mom was able to help him breathe. I'm really not sure how everyone is coping but they are.