perceptions are everything...

I have this tendency, when things aren't going my way or when something particularly sad happens, to make a B-line to spend some quality time with Damonito. He humbles me. And nothing matters as much as he does. Not a bad day at work. Not a relationship fallen apart. Not the price of gas. Not global warming. My full focus is on him.
And he is incredibly happy.
He has no idea what's in store for him. He doesn't know what it means that he'll never really know the beauty of the sunset, that he'll never ride a bike. He'll never understand words on a page. He'll never go off to college. He'll never walk down the aisle and say "I do." But he's incredibly happy. So when I'm about to throw myself a pity party, I go hang out with Damonito and he brings me back to reality. He loves me and he's always happy to see me. And if he wants me to be a chair for him, I'll be a chair.
At this very moment, he's happy. His life is grand. I live with so much more than he could ever dream. So I need to appreciate everything I have today because I have no idea what's in store either.









photo by Joe

bed head

Damonito will be 5 this summer. He's tall for a 5 year old. His bed had been an issue for sometime. He needs a crib. He can't sleep in a regular bed because we can't have him getting up in the middle of the night walking around. He needs constant supervision. He could really hurt himself. However, cribs are for babies.

Damonito's mom worked hard to get him a new bed and was successful this winter. He now has an adult size crib. Isn't it beautiful? Basically it's a hospital bed with a crib around it. There are 2 panels in front that drop, but it has windows so he can see out. It does all the things a hospital bed does. Goes up and down. You can bring his head up too. We are so pleased to have it.

Sunday as he was waking up from his nap I walked into his room and was kneeling next to his bed and he pressed his face to the window to give me a kiss. I think he really likes his bed.