I was set to post about a new drug Damonito is trying. Was trying. Sometimes they know right away that something isn't going to work. The side effects are everything and while the jury is still out on whether it helped Damonito's seizures, Verapamil caused his feet to swell, indicating poor circulation so they had to stop giving him the drug. Verapamil is actually a blood pressure/angina/arrhythmia medicine but it's a calcium channel blocker and apparently it can help kids with Dravet Syndrome for a short period of time. Usually 9-12 months.
He will likely have another chance to try Verapamil. They were hoping it would give him some reprieve while waiting for the CBD trials. Nothing has happened with the trial yet but we're hoping our politicians put people's health ahead of their petty squabbling.
In the meantime, Damonito is up and moving around more and more each day and he's standing to build towers from blocks. He still requires constant supervision but every day feels a bit better.
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