One and It's Done

 

Damonito's seizures are tremendously better since the surgery this summer. Nicole described them as "one and it's done" with the one lasting 30 seconds or so. This is great news since before the surgery he was having clusters of seizures that were sending him into status and only subsiding after mega doses of anti-seizure medicine had been administered. 

 

His memory seems to have returned to where he was before the surgery. Such a relief after so much worry about what he would retain. He even seems to have picked up some new things, too.

 

Yesterday hanging out, we were watching Elmo's World. When the door would show up in Elmo's World, Damonito would knock on the door on the front of the TV.

He's definitely doing a lot better.

Special Thanks!!!

THANK YOU to my amazing niece, Megan, for coordinating a donation effort to raise money for the Dravet Syndrome Foundation! You ROCK! And THANK YOU to the fantastic staff at Monfort Heights Elementary in Cincinnati, Ohio for donating $5 each to wear jeans last Friday. What a kind and generous thing to do! You guys are THE BEST!