Damonito has taken every anti-seizure medicine on the market. Lennox-Gastaut is a progress form of epilepsy so eventually the medicine is no longer effective.
Clobazam has been the only medication that has consistently reduced his number of seizures.
Clozabam has been available in every country except the US. Damonito could have been part of a trial to study Clobazam but he had been on Felbatol and that could alter his results. His doctor was convinced that he would benefit from Clobazam so he was given Clobazam 4 years ago.For the past 4 years, his family has had to purchase Clobazam from a Canadian pharmacy to the tune of nearly $700 per month.
Hallelujah!
