Happy Birthday! Damonito!

Damonito turned 5 today. He was having a bad seizure day so we all piled into his bedroom and into his bed to watch him open presents. He was a little put off by the stuffed scorpion that i bought for him. mostly because it's stuffed. he likes to build things and he likes to line things up. so the bag of foam blocks were a huge hit.

it's all about balance

Any thing extreme can cause seizures. For instance, bright colors sometimes cause seizures. Bright light. It's hard to take him to stores and restaurants because he gets over stimulated which causes seizures. Illness makes him much more susceptible, a high fever can cause seizures. When he's sick then his body can't absorb his seizure medication the way he normally would leaving him at greater risk. And excitement. Over activity. Too much for too long. And under activity, not enough to keep his mind and body going. What kind of day is it going to be? Right now, the color blue does it for him. We have to take care not to buy him clothes and toys that are blue. Like the sort of Thomas the Tank Engine blue. He loves to play. If he's having a bad seizure week, it's a tough call saying he can't play.

Nothing is easy

I've mentioned this before but it is always the case that one problem gets solved but another is often created. So the battle is always trying to figure out what you can live with and what you can't. But I have to say that the words "impacted" and "bowels" in a sentence are never good and as it happened managed to land Damonito in the hospital last week. He's ok and home now. Drawing and writing and playing with my lense cap.